REVIEW: INSTRUMEN KUESIONER PADA PASIEN DIABETES MELITUS
Abstrak
Diabetes melitus (DM) adalah penyakit kronis dengan prevalensi yang terus meningkat di seluruh dunia, menimbulkan tantangan besar dalam manajemen dan pemantauan pasien. Instrumen kuesioner merupakan alat penting dalam evaluasi pasien DM, memungkinkan pengumpulan data yang sistematis dan terukur terkait berbagai aspek penyakit, termasuk kualitas hidup, manajemen diri, dan persepsi terhadap perawatan. Namun, instrumen kuesioner yang ada bervariasi dalam hal validitas, reliabilitas, dan cakupan aspek yang diukur. Oleh karena itu, diperlukan tinjauan literatur sistematis untuk mengevaluasi berbagai instrumen yang digunakan pada pasien diabetes melitus. Tujuan dari artikel review ini untuk mengidentifikasi dan mengelompokkan instrumen kuesioner yang digunakan pada pasien diabetes melitus dalam mengukur berbagai aspek kualitas hidup dan manajemen diri pasien. Metode yang digunakan adalah tinjauan literatur sistematis melalui penelusuran artikel di database PubMed, Scopus, Google Scholar, ProQuest, dan ScienceDirect. Kata kunci yang digunakan meliputi "Diabetes Mellitus", "Questionnaire", "Patient-reported outcomes", dan "Survey instruments". Hasil tinjauan menunjukkan bahwa pemilihan instrumen yang tepat harus mempertimbangkan konteks spesifik populasi pasien dan tujuan evaluasi. Selain itu, instrumen evaluasi dikelompokkan menjadi beberapa kategori seperti tingkat pengetahuan pasien, kepatuhan pasien terhadap pengobatan, keparahan gejala yang dialami, rasa takut terhadap jarum suntik, kondisi mental, serta peningkatan kualitas hidup pasien. Kesimpulan dari artikel ini adalah Instrumen kuesioner yang digunakan untuk pasien diabetes melitus cukup beragam, dengan pemilihan dan penggunaan instrumrn kuesioner yang tepat dapat meningkatkan pengambilan keputusan klinis dan kualitas perawatan yang diberikan kepada pasien DM.
Referensi
Alfian, R. (2015). Korelasi Antara Kepatuhan Minum Obat dengan Kadar Gula Darah pada Pasien Diabetes Melitus Rawat Jalan dI RSUD DR.H.Moch.Ansari Saleh Banjarmasin. Jurnal Pharmascience, 2(2), 15–23. https://ppjp.ulm.ac.id/journal/index.php/pharmascience/article/view/5818/4874.
Arbuckle, R. A., Humphrey, L., Vardeva, K., Arondekar, B., Danten-Viala Msc, M., Scott, J. A., & Snoek, F. J. (2009). Psychometric evaluation of the diabetes symptom checklist-revised (DSC-R) - A measure of symptom distress. Value in Health, 12(8), 1168–1175. https://doi.org/10.1111/j.1524-4733.2009.00571.x.
Bak, E., Marcisz, C., Nowak-Kapusta, Z., Dobrzyn-Matusiak, D., Marcisz, E., & Krzeminska, S. (2018). Psychometric properties of the Audit of Diabetes-Dependent Quality of Life (ADDQoL) in a population-based sample of Polish adults with type 1 and 2 diabetes. Health and Quality of Life Outcomes, 16(1), 1–9. https://doi.org/10.1186/s12955-018-0878-y.
Bąk, E., Nowak-Kapusta, Z., Dobrzyń-Matusiak, D., Marcisz-Dyla, E., Marcisz, C., & Krzemińska, S. (2019). An assessment of diabetes-dependent qualityof life (ADDQoL) in women and men in Poland with type 1 and type 2 diabetes. Annals of Agricultural and Environmental Medicine, 26(3), 429–438. https://doi.org/10.26444/aaem/99959.
Borba, A. K. de O. T., Arruda, I. K. G., Marques, A. P. de O., Leal, M. C. C., & Diniz, A. da S. (2019). Knowledge and attitude about diabetes self-care of older adults in primary health care. Ciencia e Saude Coletiva, 24(1), 125–136. https://doi.org/10.1590/1413-81232018241.35052016.
Budi, T. A., Pramono, R. B., & Wicaksana, A. L. (2023). Validity and reliability test for problem areas in Diabetes-Five item short form (PAID-5) Indonesia version. Pakistan Journal of Medical Sciences, 39(3), 737–741. https://doi.org/10.12669/pjms.39.3.7088.
Bukhsh, A., Khan, T. M., Nawaz, M. S., Ahmed, H. S., Chan, K. G., & Goh, B. H. (2019). Association of diabetes knowledge with glycemic control and self-care practices among pakistani people with type 2 diabetes mellitus. Diabetes, Metabolic Syndrome and Obesity, 12, 1409–1417. https://doi.org/10.2147/DMSO.S209711.
Celik, S., & Pinar, R. (2016). Psychometric Evaluation of a Turkish Version of the Diabetes Fear of Self-injecting and Self-testing Questionnaire (D-FISQ). Asian Nursing Research, 10(3), 195–200. https://doi.org/10.1016/j.anr.2016.06.001.
Celik, S., & Pınar, R. (2014). Insulin injection and finger sticking fear in diabetic people. Journal of Psychiatric Nursing, 5(2), 104–108. https://doi.org/10.5505/phd.2014.85698.
Davies, M. J., Gagliardino, J. J., Gray, L. J., Khunti, K., Mohan, V., & Hughes, R. (2013). Real-world factors affecting adherence to insulin therapy in patients with Type 1 or Type 2 diabetes mellitus: A systematic review. Diabetic Medicine, 30(5), 512–524. https://doi.org/10.1111/dme.12128.
Eik Filho, W., Bonjorno, L. P., Franco, A. J. M., Dos Santos, M. L. A., De Souza, E. M., & Marcon, S. S. (2016). Evaluation, intervention, and follow-up of patients with diabetes in a primary health care setting in Brazil: The importance of a specialized mobile consultancy. Diabetology and Metabolic Syndrome, 8(1), 1–11. https://doi.org/10.1186/s13098-016-0173-1.
Fernandez-Lazaro, C. I., García-González, J. M., Adams, D. P., Fernandez-Lazaro, D., Mielgo-Ayuso, J., Caballero-Garcia, A., Moreno Racionero, F., Córdova, A., & Miron-Canelo, J. A. (2019). Adherence to treatment and related factors among patients with chronic conditions in primary care: A cross-sectional study. BMC Family Practice, 20(1), 1–12. https://doi.org/10.1186/s12875-019-1019-3.
Garcia, A., Villagomez, E., Brown, S., Kouzekanani, K., & Hanis, C. (2001). Development of the Spanish- language diabetes knowledge questionnaire. Diabetes Care/ Education/ Nutrition, 24(1), 16–21. https://diabetesjournals.org/care/article/24/1/16/21151/The-Starr-County-Diabetes-Education.
Grigorescu, E. D., Lăcătușu, C. M., Crețu, I., Floria, M., Onofriescu, A., Ceasovschih, A., Mihai, B. M., & Șorodoc, L. (2021). Self-reported satisfaction to treatment, quality of life and general health of type 2 diabetes patients with inadequate glycemic control from north-eastern romania. International Journal of Environmental Research and Public Health, 18(6), 1–17. https://doi.org/10.3390/ijerph18063249.
Hanberger, L., Tallqvist, E., Richert, A., Olinder, A. L., Forsner, M., Mörelius, E., & Nilsson, S. (2021). Needle-Related Pain, Affective Reactions, Fear, and Emotional Coping in Children and Adolescents With Type 1 Diabetes: A Cross-Sectional Study. Pain Management Nursing, 22(4), 516–521. https://doi.org/10.1016/j.pmn.2021.01.007.
Korkmaz Binay, Ş. (2012). D-FISQ - Association Between Accepting The Illness & Effective Insulin Administration In Patients DMT2. Research Square of Erzincan Binali Yildrim University, 1–19.
Larasati, L. A., Andayani, T. M., & Kristina, S. A. (2019). Hubungan Tingkat Pengetahuan terhadap Outcome Klinik Pasien Diabetes Melitus Tipe 2. JURNAL MANAJEMEN DAN PELAYANAN FARMASI (Journal of Management and Pharmacy Practice), 9(2), 101–108. https://doi.org/10.22146/jmpf.43489
Łuczyński, W., Głowińska-Olszewska, B., & Bossowski, A. (2016). Empowerment in the Treatment of Diabetes and Obesity. Journal of Diabetes Research, 2016, 1–9.
McGuire, B. E., Morrison, T. G., Hermanns, N., Skovlund, S., Eldrup, E., Gagliardino, J., Kokoszka, A., Matthews, D., Pibernik-Okanović, M., Rodríguez-Saldaña, J., De Wit, M., & Snoek, F. J. (2010). Short-form measures of diabetes-related emotional distress: The Problem Areas in Diabetes Scale (PAID)-5 and PAID-1. Diabetologia, 53(1), 66–69. https://doi.org/10.1007/s00125-009-1559-5
Mollema, E. D., Snoek, F. J., Pouwer, F., Heine, R. J., & Van Der Ploeg, H. M. (2000). Diabetes fear of injecting and self-testing questionnaire: A pschometric evaluation. Diabetes Care, 23(6), 765–769. https://doi.org/10.2337/diacare.23.6.765.
Morisky, D. E., Ang, A., Krousel-Wood, M., & Ward, H. J. (2009). Predictive Validity of a Medication Adherence Measure in an Outpatient Setting. The Journal of Clinical Hypertension, 10(5), 2461–2469.
Mustaqimah, M., Saputri, R., Hakim, A. R., & Indriyani, R. (2021). Analisis Faktor yang Berhubungan dengan Kepatuhan Pasien di Kabupaten Banjar. Jurnal Surya Medika, 7(1), 209–217. https://doi.org/10.33084/jsm.v7i1.2659.
Naegeli, A. N., Stump, T. E., & Hayes, R. P. (2010). A psychometric evaluation of the diabetes symptom checklist-revised (DSC-R) cognitive distress, fatigue, hyperglycemia, and hypoglycemia subscales in patients with type 1 and type 2 diabetes. Diabetes, Metabolic Syndrome and Obesity, 3, 27–30. https://doi.org/10.2147/dmsott.s9465.
Nazriati, E., Pratiwi, D., & Restuastuti, T. (2018). Pengetahuan pasien diabetes melitus tipe 2 dan hubungannya dengan kepatuhan minum obat di Puskesmas Mandau Kabupaten Bengkalis. Majalah Kedokteran Andalas, 41(2), 59. https://doi.org/10.25077/mka.v41.i2.p59-68.2018.
Ostini, R., Dower, J., & Donald, M. (2012). The audit of Diabetes-Dependent Quality of Life 19 (ADDQoL): Feasibility, reliability and validity in a population-based sample of Australian adults. Quality of Life Research, 21(8), 1471–1477. https://doi.org/10.1007/s11136-011-0043-0.
Papazafiropoulou, A. K., Bakomitrou, F., Trikallinou, A., Ganotopoulou, A., Verras, C., Christofilidis, G., Bousboulas, S., & Melidonis, A. (2015). Diabetes-dependent quality of life (ADDQOL) and affecting factors in patients with diabetes mellitus type 2 in Greece. BMC Research Notes, 8(1), 4–9. https://doi.org/10.1186/s13104-015-1782-8.
Permana, H., Liem, M. V., & Soetedjo, N. N. M. (2021). Validation of the Indonesian Version of the Asian Diabetes Quality of Life Questionnaire. Acta Medica Indonesiana, 53(2), 143–148.
Prevolnik Rupel, V., Divjak, M., & Turk, E. (2021). Changes in the level of knowledge of diabetes among elderly with diabetes in Slovenia in the period 2011–2020. Primary Care Diabetes, 15(5), 879–883. https://doi.org/10.1016/j.pcd.2021.07.001.
Sammulia, S. F., Yuni Elfasyari, T., & Renaldy Pratama, M. (2020). Hubungan Karakteristik Pasien Diabetes Melitus Dan Tingkat Kepatuhan Minum Obat Di Rumah Sakit X Kota Batam. Jurnal Jumantik, 5(2), 138–146.
Snoek, F. J., Mollema, E. D., Heine, R. J., Bouter, L. M., & Van Der Ploeg, H. M. (1997). Development and validation of the diabetes fear of injecting and self- testing questionnaire (D-FISQ): First findings. Diabetic Medicine, 14(10), 871–876. https://doi.org/10.1002/(SICI)1096-9136(199710)14:10<871::AID-DIA457>3.0.CO;2-Y
Stanulewicz, N., Mansell, P., Cooke, D., Hopkins, D., Speight, J., & Blake, H. (2019). PAID-11: A brief measure of diabetes distress validated in adults with type 1 diabetes. Diabetes Research and Clinical Practice, 149, 27–38. https://doi.org/10.1016/j.diabres.2019.01.026.
Wieringa, T. H., De Wit, M., Twisk, J. W. R., & Snoek, F. J. (2020). Improving interpretability of individual Diabetes Symptom Checklist-Revised (DSC-R) scores: The role of patient characteristics. BMJ Open Diabetes Research and Care, 8(1). https://doi.org/10.1136/bmjdrc-2019-001146.
William H. Polonsky, Anderson, B. J., Lohrer, P. A., Welch, G., & Jacobson, A. M. (1995). Assessment of Diabetes-Related Distress. Diabetes Care, 18(6), 754–760.
